Sunday, June 9, 2024

School Out/Summer In - Week of June 3rd

Happiness is waking up, looking at the clock and finding out you still have two hours left to sleep." ~Charles M. Schulz

And just like that, Cameron's sophomore year of high school came to a close on Wednesday, June 5th. 

His afternoon bus driver, Ms. Christy, has known Cam since he was an elementary student.  These two share a special bond.  After sending this picture, Ms. Christy told Jane that "I'll keep this in my feel good file so I can look at it when I'm feeling down."

After waking up at 5:45am every week day during the school year, Cam wasted no time adjusting to his "sleep-in" schedule on Thursday morning.  His summer hours of awakening typically occur during the timeframe of 8-8:30am.  

Cameron has worked with the Grand Valley State University graduate PT program for many years now. If Dr. Lisa asks for assistance, he is always eager to help.  On Friday, a request had been made for Cam to be videoed while driving his power wheelchair, following direction provided from a student.  

Jane and Cam arrived after lunch and had fun exploring the large innovation center.  They found many other mobility contraptions in an office during their exploration.  The PT team asked Cam to navigate areas and conduct some hairpoint turns.

In the early evening, it was off to another adventure.  At Fishbeck, where Chris works, an outdoor summer shindig was in full swing.  Cam, his mom and Ms. Amanda arrived to see an assortment of food and drinks. There was even an ice cream truck with multiple flavors to choose from!  After eating dinner, Cam and Amanda headed back home while Chris and Jane made their way to have dinner at Bonefish Grill.

Saturday afternoon, it was quite cloudy and overcast but we still ventured up north to visit cousins.  Coco prepared a special birthday dinner for Jane with homemade chocolate chip cookies for dessert.  Cam helped taste test the dough before it even went into the oven.  Freshly baked, warm cookies are definitely one of our top favorites!

Sunday was Jane's birthday and Oma and Opa had invited us for dinner.  

We arrived later in the day and the weather cooperated.  After a lengthy stroll outside in the warm breeze, we determined we could dine outdoors on their community patio.  Since Cam's grandparents are on the ground floor, it's a short walk to the peaceful seating area.

Oma surprised Jane with a cake from our family favorite Michigan bakery, Ryke's. The raspberry filling on the inside and the ice cream accompanying our dessert made for the perfect combination.  

Truly, though, the best combination is being together and celebrating each other.

Camology Quotes:

Change can be difficult, especially when it's a part of a long-standing routine.  Cam's parents didn't think switching their son's toothpaste would be too traumatic.  The evening that they did, Cam's sour face said it all.  They were not, however, expecting the following response from their son:

"The indignity I go through!"

Sunday, June 2, 2024

The Art of the Possible - Week of May 27th

"The purpose of art is washing the dust of daily life off our souls." ~Pablo Picasso

Cameron attends an adaptive art class in high school. Near the end of the school year, there is an open house to showcase all of the artwork the students have created. Cam's parents were both able to attend and they were very surprised by the display.
At first, Jane thought the pottery on the table was for decoration, but her son informed her he had made it. The arrangement included a trio of small bowls for candy, a large mug and a ceramic flower holder to place stems in. In addition to those items, the wall was adorned with beautiful artwork and expressions. 
One piece that caught the attention of both parents was a piece entitled:
"Important Questions and Feelings"
Where do you think you'll be in the next 5 years? 
I don't know.
What I'm most looking forward to in my life (short term): to practice and learn new stuff.
What I'm most looking forward to in my life (long term): To be in a group home!
Someone who has had the most impact on me and why: My mom and dad because they help me a lot.
Other people you will never forget that are important in your life right now: All of my friends.
What are you most thankful for? My family and friends!
I think others would say the best thing about me is: That I am nice and kind!
Something most people don't know is: That I am not always nice to my parents.
I was most scared when: Really loud noises.
The most important thing I've learned about life so far is: You should never be upset about what how you are or can't change.
Bucket list (things I want to do before it's too late!): I want to be more independent!
"A Reflection from Me:"
Write a short note to yourself about anything you want.  Always be Awesome!!!

It seemed like a bit of a mini reunion seeing some of Cam's favorite people including Mrs. Festian and Ms. Michelle.  He also saw his 7/8 teacher, Mrs. Wells.  Jane was able to gather the pottery pieces and bring them home to save them from the bus ride.

Oma and Opa stayed with us for two nights. 
We all surprised Cam by not telling him about incoming visitors, Auntie Karen and Sue. He was so very happy!  It had been almost two years since he'd seen Karen. The sisters traveled from the Chicago area and booked a cabin at the campground we all used to stay at, Hungry Horse.  We all enjoyed each other's company during our dinner.  The evening went by much too quickly.
Jane drove Oma and Opa back to their home on Friday while Cam was at school.  Having his grandparents stay with us is always a highlight.  Even as he's grown older, he still requests in-person good nights from his family.

In the afternoon, Cam's mom picked him up from school since he was scheduled to work.  At the Grand Valley University building downtown, the Physical Therapy graduate students awaited his arrival.  In essence, Cameron acts as their "live" PT patient and he helps them understand the best way to work with him.  They ask him multiple types of questions and they interview Jane about his background and early years. 
At the close of the session, we talked about the last baseball game scheduled for the next day.  The group of PT students asked Cam if it was WMML?  He emphatically told them it was.  They couldn't believe it since a few of the girls in his group were actually signed up to volunteer!

Saturday morning, Chris and Cam headed to the ball park, while Jane was scheduled to attend a bridal shower.  Cameron was fully supported for the final game of the season.  The GVSU PT grad students rallied around him as volunteers. Auntie Karen and Sue cheered on Cam before they were back on the road towards Chicago. (We are so grateful they made the long trip!)
Ms. Barbara and Ms. Kathy and husband Kevin were happy spectators too, seeing their former grade school students, Cam and Brody.
After the game, each kiddo receives a West Michigan Miracle League medal for being a participant in the spring season.

Later that same day, a graduate open house was held at Brody's Be Cafe.  Both Brody and Cam were invited by Addy, a senior grad and peer helper in their classroom.  She was happy to see the buddies and thanked them for coming to support her. 
It's strange to think that in just 2 years, Cameron and best bud, Brody will be graduating as well!

Camology Quotes:

Monday was Memorial Day.  Jane and her son always make a point to thank Chris for his service from when he was in the Marine Corps. Cam's dad mentioned he was donating blood this week to which his son commented:

"Dad, you're helping your country in two ways- giving blood and that you served your country!"

Sunday, May 26, 2024

Outdoor Dining - Week of May 20th

"Cooking and eating food outdoors makes it taste infinitely better than the same meal prepared and consumed indoors." ~Fennel Hudson

There are certain activities and gatherings that become a part of our core memories.  For Cameron, dinners with the Raisch fam have been happening since he was born.  This family has collectively shared life experiences with us for the past 22 years.  When we moved in across the street in 2001, we couldn't have imagined the bond we would share.  When we moved again in 2012, it was a big reason we could only venture one street over.
Scheduling is challenging between our two families, so we were pleasantly surprised to be able to add a home fish fry to the collective calendar for Friday evening.  And the list of attendees grew which was the best bonus of all!
Walleye caught by Chris and and blue gill reeled in by Mr. Steve acted as our main course, along with homemade fries, roasted veggies and fresh fruit.  Being outside to share our meal, swapping stories and memories, talking about the upcoming marriage of Megan and Nathan and of course, laughing, were true highlights.

Saturday brought a tasty treat for Cam's breakfast.  Chris drove over to Chick-Fil-A early and snagged his son a biscuit chicken sandwich for the first meal of the day.  Multiple projects were attended to and Cam provided supervisory oversight to keep his parents on task.
On Sunday, we packed up food for dinner and made our way to the cottage.  The afternoon was spent with our cousins and Oma and Opa, who met us there after lunch.  It was mild enough to gather outdoors and eat some tasty appetizers.  We were considering having our evening meal outside as well until we noticed the intense storm clouds over Lake Michigan.  

The benefit of seeing the wide open skies brings the ability to have advance warning of inclimate weather.  We all made it inside prior to the rain beating down.  Even though we weren't able to have a second outdoor dinner event during the weekend, the fresh air feeling stayed with us.  As the rain came down outside, the grilled and smoked food made its way inside.  We dined and talked and it felt a bit like the unofficial start to summer.  And we all decided that the best way to close out a weekend is to be around family.

Camology Quotes:

We are a technology driven family.  Sometimes, even we are perplexed by tech issues.  One evening, Jane's computer was having problems.  She worked on it for awhile, engaged Cam, and they couldn't figure it out.  When Chris arrived home, he and Cam tackled it again.  After some time, it was back to normal.  Jane asked her son how they corrected the issue and this was Cam's honest response:

"Mom, I am pretty smart, but I don't know everything!"

Sunday, May 19, 2024

Faithful Friends - Week of May 13th

"Things are never quite as scary when you have a best friend." ~Bill Watterson

When Cam's parents were his age, Calvin and Hobbes was a very popular comic strip published in the newspaper on a weekly basis.  It followed the adventures of Calvin, a young boy who seemed adult-like in his thinking, and his imaginary tiger friend, Hobbes.  Bill Watterson created the stories and the memorable quotes to go along with them. "Know what's weird? Day to day nothing seems to change, but pretty soon everything is different" and "Great experiences are even better when they're shared."

This time of year in Michigan, it's always crazy to experience the temperature change from one week to the next.  On Friday, Jane picked up Cam from school for her son's working session with the Grand Valley PT graduate students.  Cameron explains to the students how to transfer him, relax his muscles and understand his tone.  It's always such a positive experience and a true win-win situation.  To celebrate the end of the week, our family ate dinner outside at a sushi restaurant. 


Cam tried shrimp and vegetable tempura for the first time!  (A shout out to Mrs. Stephanie F. for always encouraging Cam to try new food adventures and he mentioned your name during dinner!)

Saturday morning, the weather couldn't have been better 🌞 The Cam fans were in full force!  A good friend and classmate of Brody and Cam, Tiana, was there to cheer on her school buddies.  Our dear family friends, Patti and Steve arrived as well.  Ms. Coleen is a such a huge baseball fan and couldn't wait to see her buddy play this season.

One of Cam's teammates is Daniel.  He has the same powerchair as Cameron and we found out that they will be attending summer camp together in July!  It always nice knowing there will be someone else you're familiar with.  We dined on Culver's afterwards with Ms. Coleen.

Sunday was another picture perfect weather day.  Jane and her son made their way to visit with Oma and Opa while Chris headed to the golf course.  We strolled along the perimeter of their community grounds.  The flowers are in full bloom and we relaxed outside in the courtyard for a bit after our exercise.

In the afternoon, we all exchanged hugs before heading back to Grand Rapids.  Cam and his mom only had time for a quick break before leaving again with Chris.  

We were destined for Uccello's restaurant where we were meeting Brody with his family and friends.  The celebration for Brody's birthday was a blast.  He chose three of his high school friends to accompany him.  Cam's bday present to his buddy was a t-shirt with the words "Awesome Since May 2007" as well as birthday socks in honor of turning 17.  During dinner, there was lots of laughter.  

To end our evening, the entire dinner crew met at our local ice cream place, Frosty Boy.  It was crowded, especially for a Sunday, but even waiting in the long line was fun.

And truly, not too many things taste better than the very first outdoor summer ice cream of the season!


Camology Quotes:

If you find a best friend who is always supportive, it is such a gift.  At school, whenever other kids act up, Brody is always comforting to his buddy. Cameron provided the following in his birthday card for his best bud: 

"Brody, I always appreciate that you are there for me when I need you. You always assure me when things happen at school that you are there for me. Thank you for being my best friend! Happy 17th Birthday!! Love, Cam

Sunday, May 12, 2024

Making Mom's Day - Week of May 6th

“Nothing is lost until your mother can’t find it.”  ~Unknown

As Cam has grown older, his sense of humor has shown through.  Occasionally, he will use his mother's first and middle name if he really wants to get her attention. His smile that accompanies the two names says it all. Each and every time, Jane tells her son to please call her by the name reserved for him and only him..."Mom."

Chris attended a charity luncheon for Special Olympics this week.  He saw Cam's best bud, Brody, and his mom.  He also spotted other friends in the special needs community as well.  

Imagine Cam's dad's surprise when he spotted the complimentary cards for Brody's Be Cafe and his son's picture in the upper right hand corner!

Friday night, a rare event occurred across the U.S.
A rare geomagnetic storm - the intensity of which had not been forecast for about 20 years - sent auroras shimmering across Michigan skies Friday night. Vibrant pinks, sea greens and even purple streaks saturated the skies, even as clouds began to move into some areas around 10 p.m. Generally, it takes just eight minutes for light to travel 93 million miles to the Earth from the sun, but the energized particles causing the current wave of aurora travel a lot slower, which caused the phenomenon to last for the weekend.  The most surprising aspect was that it was so much brighter and clearer when viewing through the cell phone camera.

Saturday morning temperatures were a bit of a shock to the system.  Cam had a WMML game scheduled for 11am. 

Chris was asked to step in as coach and the wind was whipping.  

It was close to 50 degrees when we arrived, but it felt much colder with the gusty chill. Many bystanders were dressed in winter coats. Even with the cold air, there were plenty of smiles and laughter.  It did feel like it took us all awhile to warm up after the game.

Sunday morning, Cam and Chris both wished Jane a Happy Mother's Day.  A beautiful bouquet of flowers from Cam brightened our kitchen and Cam's mom.

We had a packed agenda for the day.  We prepared a homemade coffee cake for Oma, which Cam requested we bake at Oma and Opa's so it would be extra fresh and delicious.  A cooler was packed with eggs, mushrooms, sausage along with fresh fruit and bread with our strawberry jam for toast.

When Cam's grandparents arrived home from church, their family was busy cooking up brunch.  After our tasty meal, we had a long stroll around the apartment complex.  It was a nice afternoon and we encountered quite a few other residents outside as well.  After big hugs for all, we made our trek home.

Back in Grand Rapids, it was a relaxing late afternoon.  Chris and Cam took Jane to dinner. She requested a place with outdoor dining. Her first choice was too crowded so they opted for an old standby, El Burrito.

Cam's mom shared one of her favorite stories about her son.  When he was born via emergency C-section, he was whisked away in an incubator by a transport nurse (Tracy) to another hospital.  Jane had to stay where she was for at least 24 hours before being released.  When she finally arrived the next day in the NICU with Chris pushing her in a wheelchair, the transport nurse, Tracy, was there.  She told Jane that no one had held her son yet, because they wanted his mom to be the first one!  Cam said "Mom, that was so sweet of her!"  

Camology Quotes:

Cameron always wants to make people laugh.  He commonly will say he has a joke to tell.  His "best" one this week: "I joke around so I'm a merry-go-round!"

Sunday, May 5, 2024

The Art of the Surprise - Week of Apr. 29th

"Don't tell people how to do things, tell them what to do and let them surprise you with their results."  ~George S. Patton

Aristotle said, "The secret to humor is surprise" and there was an abundance of smiles and laughter to accompany the unexpected for Cam this week.

Thursday evening, Cameron and his mom attended their first Advisory Board Meeting together.  The one-hour scheduled meeting was held remotely with our good friend, Dr. Lisa who is a professor of physical therapy.  She was awarded a grant to officially set up a powerchair driving skills assessment and training course.  Cam and friend, Onjie are the two powerchair users on the board along with three parents and Dr. Lisa.  At the close of the meeting, Jane and her son agreed it was fun.  One of the ideas they talked about providing a license similar to the one a GV student had created for Cameron so many years ago.

Friday evening, we planned to have dinner guests but kept it a secret from Cam.  Auntie Roe and her husband, Mike arrived promptly at 5p.  After the big reveal, we prepared a surf and turf meal with fresh veggies and fruit.  

After dinner, Chris set up virtual reality goggles for us all to try out.  It's very surreal to be transported into another scene while donning the eyewear.  Cam could not stop laughing and we were all breathless a few times cracking up, watching one another navigate things. 
The evening went by in a flash and we promised to schedule another dinner very soon.

Saturday's WMML game was on the docket for 12pm.  It was truly one surprise after another.  When we arrived for Cam's baseball match up, the parking lot was completely packed.  Home Depot's designated volunteers were everywhere and they had a bountiful display of hot dogs and chips for the players and fans.  Erin was Cameron's volunteer buddy and they had fun chatting.

Cam was beyond excited to see so many fans who came out to see him play.  The first big surprise was his grandparents!  

Oma and Opa rode with Aunt Betsy and Uncle Jon to Rockford.  How cool it was to see them all! We are so grateful they were able to enjoy each other's company on the trek.

The high school teachers Cam and Brody see most often, Ms. Abbie and Ms. Megan were in attendance to see their sophomores.  

Ms. Michelle, who has been Cam's school PT since kindergarten showed up as well.  Mary Jo and Ms. Cris, who have known our kiddo since he was in grade school, also surprised us.

Sporting events bring people together, but we know these fans all have a special connection with us.  We are so thankful for the love and support.

After leaving the field, we headed to Home Depot to pay it forward in light of their volunteer efforts for the WMML.  We gathered up the items on our list and met some friendly workers who were familiar with the baseball mission as well.

Sunday was Cinco de Mayo and we had thought it was the celebration of Mexico's independence.  However, we were surprised to learn that it was actually commemorating Mexico's victory over the Second French Empire at the Battle of Puebla in 1862.  Ironically, the fifth of May celebration is more popular in the U.S. than it is in Mexico.  We made our way to Lola's for dinner, which is one of our favorite places to dine and it's less than 10 minutes from our home.

Thanks to Cam's curiosity and the availability of any information needed on the internet, we are always learning.  More often than not, we are also pleasantly surprised by what we uncover in our quest for answers.

Camology Quotes:

The toll saga comes to a close... we received our official invoice from the Pennsylvania turnpike this week.  We asked Cam to guess how much it was.  He started with $50 and we kept telling him to guess higher and higher.  He finally closed in on the approximate total.  When we shared the actual bill showing the amount of $180.40, he responded with:

"That's how much it is? You'll go bankrupt!"

Sunday, April 28, 2024

Spring Showers - Week of Apr. 22nd

 "Wherever you go, no matter the weather, always bring your own sunshine." ~Anthony J. D'Angelo 

The saying April showers bring May flowers is a very old quote. Historians believe this phrase may date back to a 1610 poem, which contained the lines "Sweet April showers, do spring May flowers." A longer phrase, "March winds and April showers bring forth May flowers," has also been traced back to 1886.

This week, we experienced rain here and there as the changing weather continued to produce blooming trees and early flowers springing up.

All of our activities took place on Saturday. 
Apr. 27th was opening day for the West Michigan Miracle League baseball.  

The WMML provides an opportunity for kids of all abilities to experience the sport. Families cheer on the sidelines and the special rubberized field makes it conducive for wheelchairs, powerchairs, prosthetics and walkers.  There are are 3 youth games and 2 adult games every Saturday.

In the WMML League, the spring season teams are assigned using major league baseball names.  Cam and his best bud, Brody, are the Milwaukee Brewers.  For opening day, the first match up at 10am was the Brewers vs. the Orioles. Community volunteers take to the field every week for the 5 hour commitment.  Mitten Kids Dentistry, where Cameron has gone for almost a decade, was on deck to volunteer.  Cam was so surprised to see one of his hygienists!  It was a great first game and Cam even found a easier way to make our way to the crowded parking lot.

We were invited to celebrate Liam's 16th birthday Saturday evening.  Cam and Liam have known each other since preschool and our families have been connected since the boys were little.  Chris, Jane and their son arrived close to 5pm.  We had a tour of their remodeled home, which was a long project for them all.  Everything is completely accessible now.  Liam requested pizza for his bday dinner which everyone was happy about.  After consuming pizza and fruit, the Costco chocolate cake was presented with candles.  Liam promptly blew them all out and we all chose our ice cream flavor to accompany the delicious dessert. 

Outside, there was a warm breeze.  Everyone engaged in a few competitive games of cornhole.  We said our goodbyes, but Cam and Liam typically see each other daily at the high school.  What a fun day!

In case you find yourself needing something to do on a Saturday, head out to the West Michigan Miracle League field! Cam's Saturday games.

  • May 4th: 12:10 p.m. 
  • May 11th:  11:05 a.m. (Picture day!)
  • May 18th: 11:05 a.m. 
  • June 1st: 11:05 a.m.
Camology Quotes:

Under the heading of "be careful what you wish for" category: Jane came up with a spring school project for Cam to work on with Ms. Ann during his tutoring sessions.  Cam creates a weekly dinner menu every Friday, complete with a budget, dishes and individual costs.  Some days, Cam's mom is in a bit of a rush to prepare dinner.  And, potentially, she may conveniently forget about the project at hand. However, someone else, does not.

"Mom, this is not what was in the meal plan for dinner tonight."