Sunday, March 10, 2019

Applesauce is the Best Medicine - Week of Mar. 4th


Medicine is a science of uncertainty and an art of probability. ~William Osler 

It's difficult to determine at what age a kid can start swallowing pills versus taking a liquid medicine.  In our home, it just so happens that age is 11.
When we picked up the celebrex medicine for Cam to help with his leg pain, it came in a coated tablet.  He had already succeeded in taking baclofen in pill form recently, so we weren't too concerned about another one.  Now you may wonder about the method used.  Cam's mom believes that everything tastes better with Oma's homemade applesauce and she has successfully passed along that gene to her son.

With improved sleep, we were feeling rejuvenated by Saturday.  Since our old treadmill had begun to deteriorate, we decided to use our tax return to purchase a new one.  It arrived Saturday morning and the unpacking process began downstairs.  Always the watchful supervisor and helper, Cam and his dad spent a couple of hours getting things set up.

That afternoon, we went as a family to see the Lego 2 movie at Celebration Cinema.  We all enjoyed the show and there is a very catchy song called "Everything is Awesome" from the first Lego movie and also heard in the second one.  Cam laughed the loudest when they changed the words of the original song to "Everything is Not So Awesome" near the end of the show.

We munched on popcorn and then picked up some ice cream to go from Cold Stone Creamery.  Cam declared the entire day was "awesome!"

Back at the house, Stella provided our own home entertainment as we watched her trying to let go of and then catch the helium balloons.

Camology Quotes:

Miss Amanda typically stays later on Fridays to have dinner with Cam and hang out while Chris and Jane enjoy some time out themselves.  At the end of the week, there is always a decision point.  Where will Amanda and Cam pick up their dinner from?  When asked the question Friday afternoon, Cam's decision was:

"I would like some Culver's. Welcome to Delicious!"
(someone has been watching the Culver's commercials on tv)

Sunday, March 3, 2019

Old School Field Trip - Week of Feb. 25th

"I've got to admit it's getting better. It's a little better all the time." ~Paul McCartney 

If you ever wondered if there was any way to determine the possibility of a snow day, besides listening to a meteorologist, it turns out there is a snow day calculator online.  One may also take note that it was spot on in its prediction!  Even the deer prancing through the back yard seem to be running away from the white stuff.

On Tuesday, Cam headed in to meet a new doc, a pediatric rheumatologist.  He had reviewed Cam's blood work and latest effusion as well as our medical histories. After examining how our son's joints were responding, he noted exactly where Cam's pain was in the left leg. Conclusion: more tests needed.  After a notation to schedule an MRI, we headed off to drop Cam at school and pick up a prescription later that day.  For the first time in many weeks, Cam (and his parents) had a much more restful night of sleep.  For starters, it was the first time Cam was able to remain in his bed the entire night (vs. couch, power chair, hammock swing) in a very long time.

The extra sleep couldn't have come at a better time.  Cam's class had a field trip to his former elementary school, Meadow Brook.  What a treat to visit the younger kids he knew and all of the teachers, aides and the Project Unify team.
The friends all played bocce ball together and shared their lunchtime.  Cam named all of the teachers, friends and aides he saw.  A big shout out to Ms. Barbara, Ms. Nancy (who Cam claimed was most excited to see him), Ms. Ginny, Ms. Erin, and Ms. Kate!  Upon arrival home that day, Cam did declare it was his "most favorite field trip ever!"
Back at home, we were spoiled by Aunt Carol, who made us a homemade meat quiche and had her son Chad deliver it to us so we could enjoy a delicious meal without the prep work.  And wow, was it so tasty.
We received an email from Cam's teacher at the end of the week noting that she'd seen a big difference in him at school since he'd been experiencing more restful sleep.
And truly, our family noted a definite upswing on the mood scale overall.  Our theme song is no longer "I'm So Tired" by the Beatles...

Camology Quotes:

Our cat, Stella, is a member of the family.  She arrived a year before Cam and became his unofficial protector when he came home from the hospital after he was born.  She follows his powerchair in the morning and loves to play with water in the sink.  Cam has many a 'conversation' with her to which she sometimes does respond with a typical 'meow.'

"Stella, I have to go to school now.  I'll be home later.  You will see me then."