Snow Daze - Week of Feb. 20th

"A snow day literally and figuratively falls from the sky, unbidden, and seems like a thing of wonder." ~Susan Orlean

Monday was a day off for Cam due to his mid-winter break.  He was back in school on Tuesday and then Tuesday evening, the local meteorologists indicated a winter storm warning would be in effect beginning at 10am on Wednesday.  From one day to the next was a dramatic weather change.  Out of caution, all of the local schools were closed on Wednesday.  Then, Thursday ice, freezing rain and snow was in the forecast along with another storm warning, so once again, the local education system shut down for the day.  It was a rare occasion that for both Wednesday and Thursday, the closure announcement came before Cam was asleep both nights.  Catching some extra zzz's was a bonus for us all.  

However, since both Chris and Jane are set up as remote workers, neither of them had any breaks.  While Cam worked on keeping himself busy, his desk was moved out to the living room.  He would've rather been in school, but we all made the best of it.

Friday was a full day of school and we had an outing planned that early evening.  Fish and chips is now a weekly special at one of our local favorite restaurants, JT's, but only during Lent.

The history of the fish fry dates back to the 1800s.

German and Polish Catholic immigrants settled in Milwaukee, Wisconsin in the 1860s and began the tradition of the Friday fish fry. During Lent, they didn’t eat meat on Fridays, instead eating the fish they caught in Lake Michigan. From 1920 to 1933, Prohibition prevented taverns from selling alcohol. To keep customers coming to their businesses, Midwestern tavern owners sold meals of fried fish. Supper clubs rose in popularity during the mid-1900s, and their Friday fish fries became a tradition for many Midwesterners.

Ms. Ann, Katherine & Paul, Bexley and Sophia all met us at JT's for dinner.  Cam has declared that their homemade batter on the cod is the best in all of Grand Rapids!  

Saturday was consumed with home projects and having our longtime friends, Steve, Patti and Emma for dinner.  Burgers, homemade french fries and veggies were on the menu.  We committed to try to gather together more often.

In the early afternoon on Sunday, we headed northward to visit Coco, Max and the kiddos.  We hadn't seen them in a few weeks and they already looked different.  While Calla helped make brownies, she took on the expert position of batter taster.  Cam and Arthur looked quizzically at each other and we all had fun catching up and chatting.  After dinner and quite a few brownies, the sun was already setting.

We said our goodbyes with the promise of hanging out again very soon.  The beach looked inviting, but will be even more so once that snow finishes melting away.

Camology Quotes:

Chris sometimes acts more like a kid than his son, which we all appreciate and laugh about.  One evening, Chris was spinning Cam around while he was in transit in his ceiling track lift.  Cam "jokingly" laid down the law for his dad as it related to the spinning antics...

"Not at bed and not when I first wake up, Dad.  I need to set some boundaries for you!"

Let's Figure It Out - Week of Feb. 13th

Every human has four endowments - self awareness, conscience, independent will and creative imagination. These give us the ultimate human freedom... The power to choose, to respond, to change. ~Stephen Covey

Cam continues to find different ways to exert his independence.  He asked his parents if there was a way for him to have some type of basket to grab his hat and gloves from in the morning and put them away in the afternoon.  

It seems a simple request, but one must factor in a powerchair driving up to the container and providing a reach to promote physical activity.  Jane found a storage basket with enough clearance that could be emptied and suggested placing it close to the garage.  Chris had the tools at the ready and in record time, we all figured out the solution, together.

At school, Cam also helped his physical therapist team brainstorm a rear-view mirror idea he had.  One of the difficulties of driving in a crowded hallway at school is not being able to see what's coming, or in Cam's case, what is behind him. It will be trial and error to determine what will work best.  It is good to see Cameron so involved in areas that are truly impactful for him.

This week, the cold virus hit our teenager and he was out of school the first part of the week.  He did, however, have enough
energy to help his dad prepare a Valentine's surprise for his mom.  Jane was presented with a dozen beautiful roses and notes from both Chris and Cam.  The notes, it turns out, were created with a little help.  For the first time ever, the boys used a new A.I. (Artificial Intelligence) tool to assist with some loving prose.

ChatGPT (Chat Generative Pre-trained Transformer) is a chatbot developed by OpenAI. It is built on top of OpenAI's GPT-3 family of large language models and has been fine-tuned (an approach to transfer learning) using both supervised and reinforcement learning techniques. ChatGPT was launched as a prototype on November 30, 2022, and quickly garnered attention for its detailed responses and articulate answers across many domains of knowledge. Following the release of ChatGPT, OpenAI's valuation was estimated at $29 billion.

After Cam "confessed" to his mom that he and his dad used ChatGPT, they both had a good laugh.  Jane had seen Chris ask it to write stories, but finally logged in herself to experiment.  She asked ChatGPT to 'write a limerick about Cameron and how awesome he is' and this was the response: "There once was a fellow named Cam, Who impressed everyone, man after man.  With his wit and his charm, He caused no small alarm, And left us all his biggest fan!"

On Friday, Cam had the day off of school for mid-winter break.  Ms. Ann arrived after lunch, ready to tutor Cam.  They worked on reading, computer work and math.  It was a great session, especially since Cam had missed a few days of school.  That evening, Ms. Amanda arrived to hang out with her buddy while Chris and Jane enjoyed an evening out.

It was a quiet weekend filled with indoor projects and movie watching.  Cam and his dad worked together while Jane nursed a cold and rested the majority of the time.  

Sunday evening, we enjoyed take-out from our favorite Chinese restaurant.  Cam was a bit uncertain when Jane ordered only a single entree, fried rice and crab rangoons for all to split.  He vocalized his concern indicating he was sure there would not be enough.  After realizing how much food there actually was, her son admitted... "Mom, I should listen to you.  You always know best!"

Camology Quotes:

Jane typed in ChatGPT:  'Write a Camology Quote for Cam's blog' 

"Life is like a camera - focus on the good times, develop from the negatives, and if things don't work out, take another shot." - Cam

Once You Sign the Release - Week of Feb. 6th

Article I, Section 8, clause 8, of the United States Constitution states the purpose of copyright laws is “to promote the Progress of Science and useful Arts, by securing for limited times to Authors and Inventors the exclusive Right to their respective Writings and Discoveries.”  

In Cameron's lifetime, we have signed quite a few photo release documents.  It doesn't surprise us too much anymore to receive an email or letter in the mail where a photo of our son is being used.  Even though we are partial, we do believe Cam's smile draws others in.

During some drive time this week, Jane was relaying a story to Cam about remaining positive.  Cam said that some of his friends could use that positivity.  This led to a conversation about choosing to be a "Grumpalump" or "Smile A Mile."  Jane told her son that it's truly not possible to smile all of the time under every circumstance, but they both agreed that it was better to be more smiley versus being more grumpy.

The weekend brought a packed agenda.  Saturday after lunch, we made our way to LMCU ballpark where a Polar Plunge was taking place.  Participants were asked to raise money for Special 
Olympics Michigan.  Cam's best bud, Brody, was set to plunge in a freezing cold pool of water a little after 2pm.  The sun was shining so it did feel a bit warmer than the 40 degrees on the thermometer.  Our mutual good friend, Ms. Stephanie, came by to root Brody on as well. 

The local sheriff's department asked Brody to be a part of their team.

We all cheered watching the brave registrants jump into the frigid H2O and we were especially loud when Cam's best bud did his part.

On our drive back home, Cameron told us he was happy we went to support Brody.  That evening, we enjoyed a takeout dinner from a favorite local spot, Cascade Roadhouse, and watched the classic movie, Ghostbusters, as a family.

Earlier in the week, we experienced some rain and warmer weather.  We were a bit nervous that our last adaptive skiing lesson may be canceled due to poor conditions.  Thankfully, the slopes were open and the forecast was sunny with 50 degree weather!  It was the first time Cam experienced skiing in ideal, sunny conditions.  His adaptive ski team of Jason, Grace and Vincent expertly guided him onto the chairlift and down the hill close to a dozen times in our two-hour session.  Cam had his fastest run down the hill ever, according to him.

As it turned out, it was a good thing our last event was Sunday.  Chris' snowboard binding broke on our final sprint down the hill.  He was fine, but had to walk down the last half of the slope.  We thanked Team Cam for their volunteering time and expertly teaching Cam additional skills in adaptive skiing.

Since it was SuperBowl Sunday, we promptly headed home after leaving Cannonsburg.  Soon after we arrived, Coco drove up with her kiddos.  Molly and Jude entered our home shortly afterwards.  We feasted on a spread of chips and dips, wings, meatballs, carrots and celery.  The game was good, the company even better and the weekend overall was simply awesome!

Camology Quotes:

Cam's team of PT, OT and Speech experts at school are always looking for different ways to enhance his school experience.  After school one day, he talked about his OT asking him to bring in any unique silverware from home.  That same evening while Cam was in his nighttime routine, Jane asked him if he wanted to bring the fork into school. 

Cam was incredulous and exclaimed:

"What did you say Mom?!" 

"Did you want to bring the fork into school?" 

*insert Cam uncontrollable laughter* 

"I thought you said 'pork' Mom!" 

"You thought I asked you if you wanted to bring the pork into school?" 

*insert Cam & Jane uncontrollable laughter*  

"I love you, Mom.  Thank you for bringing humor into my life."

My IEP - Week of Jan. 30th

"I am ready to face any challenges that might be foolish enough to face me." ~Dwight Schrute- The Office

Cameron's week started off with an after school pick up for an appointment at Mary Free Bed.  After checking in with one of our favorite docs, we had talked about trying a new place for an early dinner.  Hancock's was highly recommended for its chicken tenders and not far from where we were. 

It was a tasty and quick meal and a new place to add into our rotation.

Mid-week brought a meowing request from Stella to be on Cam's bed for reading.  Jane and her son were quite surprised as this has only occurred a handful of times.  We don't think she was listening intently but we're quite certain she enjoyed the toasty bed.

For the majority of the week, Cameron's thoughts were consumed by his upcoming IEP meeting on Friday.

From on the onset of Cameron's education, he has been followed by IEP documentation.  Each public school child who receives special education and related services must have an Individualized Education Program (IEP). Each IEP must be designed for one student and must be a truly individualized document.  

Cam was interviewed by his teachers about his thoughts for the future and his own ambitions.  Chris and Jane arrived prior to the meeting time and with previous joint communication, agreed that their son would be in the IEP meeting for the first portion and then head to his computer class.  The meeting went well and Cam interjected when appropriate.  Chris and Jane were at the school for almost 90 minutes and felt that the time was productive.

Saturday morning included project time for father and son as they tested out some new software.  

We had plans to meet Brody and his mom for an early dinner at Applebee's.  Both of the ninth graders are creatures of habit- Brody loves cheeseburgers and Cam loves chicken tenders.  True to form, the boys ordered as expected.  It was fun to sit and chat with our friends.  When Jane brought up a story about Cam's friends arguing as to who would help him at school, Brody jumped in and provided input.  Cam immediately responded with "Brody, no drama!"  We all had a good laugh. 

Sunday afternoon brought us back to Cannonsburg to enjoy our adaptive family skiing.  A ski instructor questioned Chris and Jane as to why they were in the very short "lesson lane" and they explained they were skiing with their son.  Cam's mom headed back to the lodge and was able to secure the ASA-WM (Adaptive Ski Association of West Michigan) vests to show that they were official.  It was an awesome two hours of skiing.  At one point, Cam and his skier went over a fairly big bump.  After their run, Cam told us that when they went over the small snow mound and he went up in the air, it "felt like I was flying!"

Camology Quotes:

After settling into bed one evening, Cam's eye was watering and his mom asked why it was dripping.  He informed Jane that soap had gotten in his eye in the shower.  The conversation continued.

"Cam, are you going to be ok?"

"I'll live."

More Sleep*Ins - Week of Jan. 23rd

As a younger kid, it seems one cannot wait to wake up, start the day and get going.  As Cameron's parents, we had somewhat given up on the idea that our son would ever learn to "sleep in" - especially on the weekends.  When it seemed to magically happen less than 2 years ago, we almost felt it was too good to be true.  Now, in true teenager form, Monday mornings are a bit more difficult when it comes to waking up.  It has been reported that supposedly Albert Einstein consistently slept for at least 10 hours and there is no denying his genius status.

The colder weather and snow returned this week and for once, it was welcomed knowing that it would secure our upcoming Sunday skiing venture.

After a busy week, Cam and his mom decided to find a movie to watch Friday night.  They landed on "Clue" which was an old film (circa 1985) based on the board game.  Although it was a bit silly, there were funny parts along the way.

On Saturday, we loaded up the van following lunch to see Oma and Opa for our pre-planned afternoon and evening with them.  We were under a winter weather advisory for the duration but it didn't seem that it would affect us too much.  After setting up some new furniture and attending to some items, we sat and relaxed for a bit.  We decided it would be smart to head out to dinner a little early since the snow had begun falling.  Red Lobster was our destination to celebrate Opa's birthday.  We enjoyed an appetizer and tasty biscuits as we awaited our meal.  Cam had a perfect view of the kitchen door and definitely kept a close gaze in that direction.  The restaurant was surprisingly busy and we all enjoyed our chosen fish dinners.  

The snow machine ramped up outside and we were surprised to see our cars covered upon exiting.  Oma indicated she could drive back so that Chris, Jane and Cam could begin their trek back to Grand Rapids.  Little did we know that our winter weather advisory had actually changed to a winter storm warning while eating our food.  It was slow-going and a bit slick on the way home.  Oma called us when they arrived back at Rosy Mound.  In our own driveway, there were roughly 5 new inches of snow.  The van couldn't quite make it all of the way up, so Chris backed us down and proceeded to snow blow the entire driveway before we could enter the garage.

We were all especially tired that evening and slept in until 8:30a the next morning.  With the fresh snow, we anticipated great skiing conditions Sunday afternoon and we were not disappointed.  A big surprise (although it shouldn't have been) was how crowded the ski resort, Cannonsburg, actually was.  It seemed that everyone had come out to enjoy the slopes.

Team Cam was all smiles as everyone appeared more secure in their balancing acts.  We put in a full two solid hours of skiing.  Our son secured a hot chocolate on the drive home commenting how much fun it was.

Also enjoyable was a trek over to Renew Mobility.  A big shout out to the non-profit for posting Cam's picture.  Chris and his son drove over to drop off equipment we were no longer using and pick up a manual chair that can be used where Cam's powerchair may not be able to go.  We are so thankful for this organization and they are most appreciative of their Youth Ambassador, Mr. Cam!

Camology Quotes:

On the weekend evenings, Cam typically enjoys a frozen treat or similar dessert.  Jane took a new container 
of Reese's ice cream out of the freezer  after dinner to allow it to thaw just a bit prior to scooping.  Cam asked if he could have some yet and his mom explained it needed some time to melt.  And her teenager responded with:

"Mom, I'm acutely aware."

Details Required - Week of Jan. 16th

"It's the little details that are vital. Little things make big things happen." ~John Wooden

If you're telling Cam a story about something that happened, we encourage you to be armed with every single bit of information.  It may feel like an inquisition at times, but Cameron thrives on each and every element.  

Jane had ordered single silicone microwave popcorn "poppers" but didn't alert Chris or Cam.  The funny guys decided that perhaps they were meant to go over your hands for some reason. 😆

After a typical week, Ms. Amanda and Cam spent Friday evening hanging out and watching a movie.  They enjoyed Chipotle for dinner which Cameron declared was delicious.

After everyone slept in on Saturday, it was a lazy start to the day.  While Chris was nursing a cold, Jane and her son headed north after lunch.  They were invited to Coco's for dinner.  Cam appointed himself the safety supervisor for Calla as she used a child utensil to "chop up" mushrooms.  Calla's baby brother was wide awake when Cam asked if he could hold him
for a minute.

Dinner included salad, beef stroganoff and noodles, roasted broccoli and garlic bread.  A dessert of homemade brownies with ice cream, hot fudge and whipped cream topped it all off.  Cam didn't recall having beef stroganoff before and stated it was so good!  And the sundaes are in his absolute favorite category.

Sunday afternoon we were scheduled for our 2nd ski outing at Cannonsburg.  It had rained a few days during the week so the conditions were not ideal.   Luckily, the resort was able to make enough snow to have a base.  Chris was on the upswing and ready to head to the slopes with Jane and their son.

Cam said he felt even more comfortable this week and his team seemed to be in a groove as well.  It wasn't the best skiing due to some slushy elements, but we were all happy to have the opportunity to participate.  At the end of Cam's lessons, Jane told the volunteer trio how thankful we are for their time and expertise.  It is the only way our family can safely be on the slopes together!  Check out Cam's video ⛷

Camology Quotes:

Cam is always eager to hear about a happening or event that happened to anyone he knows.  Chris started talking about an incident that happened at his work and it involved a key fob.  Cam immediately called Jane over and said:

"Mom, you need to tune into this story..."

(The story: A co-worker of Chris "checked out" a company truck to drive to White Cloud, roughly an hour from the office.  The "check out" is a key fob which if inside the vehicle, allows you to start it without placing a key in an ignition switch.  This co-worker drove and was pulled over by the police in White Cloud because the truck was reported stolen.  It turns out the actual key fob for that vehicle was already under the seat and the key fob the co-worker grabbed was slated for another vehicle...hence why it was reported stolen!)

Winter Adventures - Week of Jan. 9th

"Believe you can and you're halfway there." ~Theodore Roosevelt

It was a busy week of school for Cam.  Even during the weekdays, he is completing physical therapy activities throughout the school day.

Cameron prefers to have things to do on the weekend and this one was set up for success.

Our family was invited, through the non-profit Lori's Voice, to visit The Critter Barn on Saturday morning.  This farm was launched in 1984.  The founding family moved from the city to the country.  Within six years, they were welcoming kids from schools on field trips and the West Michigan farm is now a destination to over 100,000 visitors.  The Critter Barn recently purchased adaptive equipment through a grant they applied for.  The equipment will enable kids with different abilities the option to use an adaptive bike or a stroller with a tray.  The tray is an excellent spot for bunnies to hang out!  It was a very brisk morning seeing the critters, but we loved seeing all of the different animals.  Cam's favorite part was seeing the pigs.  

From Zeeland, we made our way to Grand Haven to meet Oma and Opa for lunch at The Stable Inn. There was quite a bit to choose from on the menu and it was easy for Cam to navigate in the restaurant.  

After a filling meal, we drove over to Rosy Mound to help Cam's grandparents with a few to-dos.  Jane and her son love organizing and they worked with Oma to put away holiday decorations while Chris installed a motion sensor light in their hall closet.  We watched a Disney animal show and before we knew it, the late afternoon had set in.  After hugs and goodbyes, we had an uneventful trip back to Grand Rapids.  That evening, Cam requested to watch a movie that had a person in a wheelchair.  We chose "The Upside" because Chris and Jane had already seen it and felt that Cam was mature enough to understand some of the adult themes.  Cam really liked the film, especially the funny parts and the fact that the main character had a power wheelchair similar to his.

Jamie Paolinetti of Disabled Sports USA has said "limitations live only in our minds."  

That could be a motto for the  Adaptive Ski Association of West Michigan  which is a volunteer organization.  It was established in the early 1980s as Cannonsburg Challenged Ski Association (CCSA) to offer individuals with disabilities the opportunity to participate in winter activities. CCSA started with only ten students, one outrigger, a bamboo pole and one sit ski, and has now evolved over the years into a professionally trained organization with a full range of adaptive equipment, ready to serve a wide variety of needs. In 2022, the name was changed to Adaptive Ski Association of West Michigan (ASAWM).  

We had enrolled Cam for a full session which consists of 5 two-hour lessons over the course of 5 weeks taking place on Sunday afternoons.  Chris and Jane are able to buy lift tickets and ski with their son too (as long as they don't get in the way of the professionals).

Cam's team of three volunteers consists of Jason, the team leader, Grace and Vincent.  All of them are extremely proficient skiers.  However, tethering the adaptive skis that Cam uses is very different from just traversing down a hill on your own.  One of the most difficult aspects is positioning the adaptive equipment on the chairlift.  It actually springs up to place the sled portion on the lift itself.  It's quite a bit of maneuvering.

Since Cam is involved in a lesson, he is able to wait in the "short line" for quicker ascent to the top. 

Fortunately for Cam's parents, they are allowed to stay in the same line as well.  Even though Cam tipped over twice, he took it all in stride and requested another trip up the chairlift.

At the end of the lesson, our teenager told us "I was nervous before it started but now I can't wait to do it again next week!"  His parents couldn't agree more 😀

Camology Quotes:

Cam has his own set of "bad" words that he doesn't like to hear and tries not to use himself.  At the top of his list are the words 'dumb' and 'stupid.' He learned from a very young age they were not good words to use to describe others.  Cam and his dad were working on a network issue at home one evening.  They were both frustrated over a blocking element in their troubleshooting.  To express his own negativity, Cam chose to spell out his frustration.

"That's d-u-m-b right there!"

Bring on 2023 - Week of Jan. 2nd

"What the new year brings to you will depend a great deal on what you bring to the new year." ~Vern McLellan 

"And now we welcome the new year. Full of things that have never been." ~Rainer Maria Rilke

Our New Year began with our Arizona family consisting of Grandma Sue and Layna with us until Thursday evening.  Monday was our busiest day trying to fit in multiple things.  Cam and his cousin played lots of different games together and luckily, they aren't too competitive and actually enjoy the interaction of the games.  

Everyone assisted with the removal of Christmas tree ornaments.  Layna was on her uncle's shoulders (and head) to reach the highest decorations at the very top. 

For lunch, we made our way to a newer place, Bobcat Bonnie's, to dine in their outdoor igloo we had reserved.  Each of us ordered something different and we all approved.  The heater inside the dome and blankets to use were greatly appreciated.  Plus, it was a new, unique experience for Cam's grandma and cousin.

We traveled to Ms. Amanda's home on Tuesday to say hi and to see her puppy, Otis.  Grandma Sue and Layna spent quite a bit of time with Amanda last summer and wanted to be sure to see her before they left.

On Wednesday, Cam had a scheduled haircut and his cousin wanted to come along as well.

When Thursday arrived, it seemed all too quickly that we were taking our final pictures and packing up.  

Cam and Grandma Sue have a standing picture each time they see each other now to determine how much Cam has grown.

Layna had to get in on the standing shot so we can begin checking her height progress as well.  

At the airport, there were hugs all around.  This was the very first time we could say, "see you in a few months!" 

One of our family Christmas presents we announced is for Chris, Jane and Cam to travel to Arizona in the spring to spend time with family out west.

Friday felt much too quiet in our household.

That evening, Cam and Jane rented the movie "Lyle, Lyle Crocodile" to watch since they had read the books together.

On Saturday, we were looking forward to another family Christmas present- dinner and tickets to our local minor league hockey team, The Grand Rapids Griffins.  As an added bonus, it was also the 2nd annual sensory friendly game.  

Cam has always had an aversion to very loud noises and this game promised the following: no goal horn, decreased microphone volume, decreased music volume and a quiet room if you wanted to watch the game away from the crowds altogether.  

We ate a delicious meal at a restaurant we didn't even know existed inside the arena!  Thankfully, we had made reservations because it was quite busy.  

We found our seats and settled in for the exciting view of the hockey game.  

We were all laughing at the sign depicting "Wacky Kids Cam" knowing it was showing camera shots of kids in the stands but cracking up with the play on words.

Before leaving, we stopped in the quiet room to check it out.  Not only was it quiet, but so relaxing.  Cam thought it was especially cool that you could see the game on big screen tvs as if you were right in the front row seats.

Although the Griffins didn't win the game, we definitely felt like the night was a big winner for us!

Camology Quotes:

Cam and his cousin, Layna seemed more like friendly siblings during their time spent with one another.  Jane told them they were like a brother and sister who got along really well.  When they were playing games together, they both commented.

"You're fun, Layna, and funny!"

"We're good together, forever and ever." ~Layna